Monday, April 15, 2019

The Best of It: Part II

We are advised that when life gives us lemons, we should make lemonade, and that when life gives us limes, we should make a gin and tonic.

But sometimes we're just so sad - so sad - so sad. It's hard to summon the strength - and the chirpy cheeriness - to do anything at all positive about the situation. The situation, in fact, is so terrible that we feel we would dishonor its tragedy by even trying to rouse ourselves to go forward.

We just want to lie amidst the ruins of what once was our life, cursing the universe and sobbing.

Some of this is good and right and necessary.

Especially the sobbing.

I've done my share of sobbing over the past couple of weeks, as my husband, diagnosed with advanced Parkinson's last year, has continued to decline in strength and mobility. A week ago, after several 911 calls in succession to pick him up off the floor after a fall, and his near-total inability to get off the couch at all without professional assistance, he ended up in the hospital. Now he's in a rehab center for a week? or two? or three? Seeing if he can regain the ability to function enough to move back home - or ??

What will the future be for him?

What will the future be for me?

What will the future be for us?

The rehab center is about half an hour's drive from home, and I go there every day, so this whole episode in our lives is not only heartbreaking, but time-consuming. This month I'm also teaching an online course for the graduate program in children's literature at Hollins University in Roanoke, and working with three aspiring writers through the mentoring program sponsored by the Society of Children's Book Writers and Illustrators, and writing a book of my own under contract (my most challenging title yet - the book set in a coding camp for kids, where I know - or at least initially knew - nothing whatsoever about coding).

I can't just give up on these projects. And I don't want to. This current heartbreaking situation is not one that is going away any time soon. This is not a sprint. It's not even a marathon. It's the way my life is going to be for the foreseeable future.

Somehow I HAVE to find a way to go on living - and working - and even (dare I say) being happy.

So the other day, I packed up a tote bag filled with all kinds of tantalizing and delicious work projects: a book to read for my class, my laptop so I could respond to my students' delightful posts on last week's reading, mentee manuscripts to review, my clipboard and pad of paper and favorite pen for scribbling notes for Chapter 3 of my book.

When my sister and I were growing up, one of our favorite ways to spend a day was with what we called "Personal Business." We each had a pegboard box: a rectangular box with a sliding wooden lid marked with holes where you could insert colored pegs. We had long lost the pegs, but the boxes remained. We'd fill them up with a book to read, a poem to write, homework to do, a potholder to weave with those little cloth loops on a little metal frame. Then we'd get into our beds, each with our Personal Business, and work side by side.

A few Christmases ago I opened my present from my sister, and somehow, on Ebay, or wherever, she had found . . . . matching  pegboard boxes for each of us! (Small teddy bear in the photo for scale):
This cherished pegboard box, alas, is too small to hold all my current work projects. But as I packed them up to take to the rehab center, I suddenly remembered the pegboard days. I would spend a morning doing Personal Business as I visited Rich at the Powerback rehab center!

And so I did. As Rich lay in bed, watching TV, dozing a bit, or was wheeled off to physical or occupational therapy, I sat curled up in a nearby armchair, sending emails, reading for my class, and making some notes for my book. Of course, we also chatted - and laughed at old jokes and memories - and just kept each other company.

My morning was productive - and cozy - and companionable - and comforting.

My morning was . . .  lovely.

I still don't know what the future holds for him, or for me. But maybe . . . just maybe . . . it will be okay - in not a Plan B way, but a Plan Q or R or S or P way - for both of us.

2 comments:

  1. My friend: you are an inspiration. Know you are being held in my heart.

    ReplyDelete
  2. Thank you for this! Sending you strength for the journey. Beth Newton Watson and Ross Davies

    ReplyDelete